A 14-year-
old boy has been left
with the body of a 110-year-old in India because he has a rare disease
which makes him age eight times faster than normal. Ali Hussain has seen
five of his siblings die from the same condition called Progeria which
is kno
wn to affect just 80 people worldwide.
Two of his brothers and three of his sisters have died from the
disease in Bihar, the poorest state in India. The rare condition is
known to affect only 80 people in the world, but has killed five of his
siblings Progeria causes rapid aging and sufferers of the genetic
disease are prone to arthritis, eye problems, heart disease and
baldness. Sufferers are not expected to live much beyond the age of 14 –
but despite the grim-prognosis Ali has refused to give up hope. “I very
much want to live and I hope there is medicine for my condition out
there.
I’m not scared of death but my parents have suffered a lot. I’d love to live much longer for them. I don’t want to burden them with any more
pain.” Ali’s parents Nabi Hussain Khan, 50, and Razia, 46, are first
cousins and were the product of an arranged marriage 32 years ago. Their
children Rehana, Iqramul, Gudiya and Rubina have all died from Progeria
between the ages of 12 and24.
A fifth child, a boy who died within 24 hours of being born, is also
thought to have had the rare condition.Nabia and Razia, who have had
eight children in total, do have two healthy daughters – Sanjeeda, 20,
who is married with two children of her own. Their youngest daughter
Chanda, 10, also does not have Progeria. When their first daughter,
Rehana, was born in 1983 they had no idea anything was wrong at first.
It was only after her second birthday when she couldn’t eat or walk
properly did they visit a doctor. But the doctor was baffled and he sent
them home with some medicines. Progeria was so rare and poorly
documented that most doctors had never heard of it.
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